Father with Huntington’s disease denied NDIS support

Photo by Louisa Rebgetz/ABC News: Brett Kelly and sons Daniel and Liam
Contributed by Adam Carlton

The story of Brett Kelly, a 46-year-old former Brisbane security guard and father of three, with terminal Huntington’s disease, should move the most unfeeling of us. But it is the treatment he has received over his application for National Disability Insurance Scheme (NDIS) support that should make our blood boil.

Brett suffers from continuous involuntary movements, cognitive issues, tremors, depression, and anxiety, and his symptoms will become more pronounced, over the little time he has left. He is no longer Capable of working, and his three children have a 50 percent chance of developing the same illness. Brett has a lot to deal with.

He now survives on Newstart and this forces him to attend regular job interviews and carry out other mandated obligations, despite the difficulties he faces.

Letters he has received in relation to his application have told him, that he does not meet the criteria to get the support pension. He is appealing against the decision.

Huntington’s Queensland CEO Jan Samuels said it was a devastating illness for sufferers.

“It’s often described as being a cross between dementia, Parkinson’s disease and motor neurone disease all at once, so it’s a pretty nasty condition.”

The sticking point is that an application for NDIS help is dependent on the criteria established through Centrelink. A disability is measured up against an inflexible table, designed around percentage application of parts of the body, the level of cognitive capacity and and ability to carry out daily self care needs. In effect, those whose condition effects the whole body and not concentrated in specific parts are at a disadvantage. Decisions on whether to give or deny support are not made based on capacity to work.

It is a system designed to exclude as many people as possible, and Brett Kelly is only one of the human faces of the discrimination and suffering it causes, showing the callous side of government policy.

People are hurt, when the government is enmeshed in an ongoing war to dismantle the welfare system. The first step in doing this, is to transform what was once considered a basic right, into a form of charity.  This is but a short step from here, to spread the assumption that most of those who come for help are malingerers. It justifies the cruel outcomes that occur, when people are presumed guilty until they prove they are innocent. Even then, many are still miss out.

Australia has gone through this progression.

According to a statement from Department of Human Services general manager Hank Jongen, 70 percent of applicants for disability support are accepted and less than 20 percent of appeals overturn the original decision. When you consider that there are 100,000 applicants a year, a lot of people are being affected.

The NDIS was supposed to be a more efficient and fairer way to help those in need, if one believes the government spin. But cases like Brett’s, show that it is really a continuation down the same road.

This road assumes that as a society, we do not have a responsibility to care for the less fortunate among us. We must ask ourselves. Is this the Australia that we Want? If it is not, how much longer are we going to allow this to continue?


2 Comments on "Father with Huntington’s disease denied NDIS support"

  1. Anne McMenamin | 6 August 2018 at 3:32 pm | Reply

    This is appalling – how low has Australia sunk?! Huntindon’s is the most dreadful disease. There should be no question of not getting a disability pension.

  2. trevor jarrett | 9 September 2018 at 8:55 pm | Reply

    i would like to draw the contributor of this article (adam carlton) to a probable inaccuracy in his reporting…in the ABC article written by zoe coleman on the same subject she cites centrelink’s general manager hank jongen as confirming the rejection of 70% of the 100,000 disability support pension applications it gets each year…so if zoe coleman reported correctly then centrelink accepts 30,000 disability support pensions each year….out of a australian population of 25 million i think the application number is quite low….zoe’s ABC article also quotes a lawyer paul watson as confirming the vast majority of disability support pension applications get rejected…paul thinks the criteria is too harsh and also cites some paraplegics as not qualifying !!!….centrelink always deadbat criticism away with” their inability to talk about specific cases” bulls**t….the only ways i see that centrelink could be forced to adopt a fairer system is through lobbying of politicians before an election,or maybe a referendum…centrelink’s general manager also is contactable directly by googling the following address—-https://startsat60.com/tech/centrelink-boss-wants-you-to-contact-him-personally-with-your-complaints…bottom line is that brett kelly deserves to be treated much better that he is under the current system….as i am another of the 1800 huntingtons sufferers going through the same centrelink hoops so i can have the dignity of not being forced to front job interviews when my cognitive functioning impairment makes me obviously unsuitable….to anyone wishing to know where they stand with their own disabilities in centrelink’s eyes– centrelink’s impairment tables are actually a helpful thing to download and read through and see how many impairment points any person has….

Leave a comment

Your email address will not be published.


This site uses Akismet to reduce spam. Learn how your comment data is processed.